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Type 1 Diabetes Clinical Trial Site Launched by JDRF

The Juvenile Diabetes Research Foundation (JDRF)’s new Clinical Trials Connection website gives patients helpful information about what is involved in a clinical trial and a means to find trials that are best suited for them.

End-of-Life Counseling: What the Bill Says and Why It Matters

Does the “end-of-life counseling provision in the House health care reform bill put us on the road to euthanasia? Or is it good news for patients?  I’ve already said I think it’s good news.  Too few people realize that decisions at the end-of-life are often a trade off:  For a longer life, you can pay [...]

Veteran’s Administration Launches New Suicide Prevention Website

Given that suicides by veterans of the Iraq and Afghanistan wars could outnumber the combat deaths, the Veteran’s Administration (VA) has been under a lot of pressure to do more prevention.  The VA recently launched a Suicide Prevention Website.  The site is not ideal, but there is plenty of information there and some useful downloads.  [...]

Obama Nominates Francis Collins as NIH Head in Boost for Patient Advocates

President Barack Obama has nominated genomics pioneer Francis Collins as head of the National Institutes of Health, Health and Human Services. According to a White House Press release, Obama said: “The National Institutes of Health stands as a model when it comes to science and research.  My administration is committed to promoting scientific integrity and [...]

Disease Foundations Get New Clout, But Face New Risks as Well

Disease foundations have been taking a larger role in drug discovery and development.  The financial crisis has made it easier for such groups to get partnerships with biotech firms, who have seen venture capital and big pharma deals decline drastically.  But this new role also brings more risk to the foundations. A recent article in [...]

When Tragedy Strikes, Build a CaringBridge to Keep Patients Connected to Friends and Families

At CaringBridge, caregivers or patients can quickly set up a personalized website where family and friends can easily get updates and leave messages. This is a must-have tool for anyone facing a critical illness or recovering from one. I became aware of this great tool a couple of weeks ago, when I emailed Julie (not [...]